Disability Inclusion

Original Article Published On the JNS

The Jordan River Village is the only free, year-round, medically safe, overnight camp in the Middle East for kids living with serious medical conditions and disabilities.

The applause from the audience of over 900 at the SeriousFun Children’s Network gala at New York’s Jazz at Lincoln Center was rivaled only by the smiles of the 22,000 children with serious illnesses and 5,000 families who have taken part in the activities of the Jordan River Village in Israel during the past 10 years.

The Jordan River Village camp in Givat Avni (15 minutes west of Tiberias and 40 minutes east of Haifa) is part of the SeriousFun Children’s Network, the global organization of 30 camps and programs founded by the late actor and philanthropist Paul Newman. The Nov. 14 gala, which raised $2.2 million, honored Newman’s widow, Joanne Woodward, and brought together inspiring campers and celebrities such as actors Julia Roberts and Samuel L. Jackson, singer/songwriter Sara Bareilles and violinist Joshua Bell.

Roberts spoke of her personal connection to the camps. “I was a counselor for one summer at the Hole in the Wall Gang Camps [founded by Newman in 1988 and part of the SeriousFun Network]. I witnessed some of the strongest and bravest people.”

The biggest stars of the evening were the campers from SeriousFun Children’s Network, including Logan, Taylor, Maddie, Serenity, Drew, Zippy and Sophia. The campers wowed the crowd with a number of musical performances, participated in segments with SeriousFun’s celebrity guests and shared personal stories of the impact of the camps. Drew said, “At camp, I feel safe and respected and loved all the time.”

Taylor’s mother, Natasha, spoke of her daughter’s 40 hospitalizations and transfusions. “Through it all, Taylor has been a trooper. She is strong, resilient and brave in the face of it all. Camp gets it. All of it. They think of everything. There is no need for drone moms. At camp, she found her second home. We are blessed with a village!”

Jackson and his wife, LaTanya Richardson Jackson, noted Woodward’s great impact on the children served by SeriousFun. “On top of her incredible career, we also want to honor her work over the years with the SeriousFun camps. She and Paul always recognized the real stars at the camps are the kids. And that’s the truth.”

NEW YORK, NEW YORK – NOVEMBER 14: John Mellencamp performs during the SeriousFun New York City Gala at Jazz at Lincoln Center’s Frederick P. Rose Hall on November 14, 2022 in New York City. (Photo by Bryan Bedder/Getty Images for SeriousFun Children’s Network)

Other performances came from singer/songwriter John Mellencamp; Bell, accompanied by pianist Peter Dugan; and the Martha Graham Dance Company.

Bell shared a moving story of flying with Newman on his personal plane to visit and perform at one of his camps. “I was looking for the place when all of a sudden, Joanne walks out—in jeans with her hair tied back with the warmest smile.” He recounted how she kept in touch with many camps “for a long time.”

The evening also featured personal video messages from Elton John, Meryl Streep and Channing Tatum. The showstopper, however, was the event finale of “Brave,” performed by Bareilles together with the campers.

The Jordan River Village, the only free, year-round, medically safe, overnight camp in the Middle East for kids living with serious medical conditions and disabilities, is one of SeriousFun’s 16 camps and programs serving children living with serious illnesses and their families around the world. Another 14 camps in South America, Africa and Asia make up the network’s 30 camps worldwide. The 60-acre camp in Israel features Jerusalem stone and is bright white; the materials used in the construction of the zipline and climbing structures take local weather conditions into consideration.

Campers at the Jordan River Village camp live with a wide range of serious and chronic illnesses (both visible and invisible) and represent the diversity of Israeli society—participants come from all over Israel, are rich and poor, Jewish and Arab, Hebrew and Arabic speakers, religious and secular. There are participants with 40 different medical conditions, including (but not limited to) spina bifida, arthritis and kidney, metabolic, neurological and skin disorders; some campers are ventilator-dependent. The camp aims to help participants gain confidence and a sense of independence.

The Jordan River Village was initially shut down during the COVID-19 pandemic and was then given permission to reopen in a limited capacity under certain conditions. The village created “JRV on Wheels” to bring the camp program to families.

The camp is in the process of starting a fully medically accessible mechina (post-high school, pre-army informal education) program as well as an accessible glamping option.

Newman and his impact are still very much felt at the camp. He “was part of the building of Jordan River Village, but he never made it here,” noted Gail Androphy, executive director of American Friends of Jordan River Village. Newman died in 2008, four years before the camp opened after raising $30 million from supporters in Israel, the U.S. and worldwide. Today, the village continues to receive support from the Newman’s Own Foundation. Its annual budget of $3.5 million supports a lean staff that is supplemented by thousands of volunteers a year.

Newman, who visited Israel in 1959, is known for his portrayal of Ari Ben Canaan in “Exodus,” the 1960 film based on the historical novel by Leon Uris about the famous Exodus ship and the founding of the State of Israel. The Jordan River Village was inspired by Newman and founded by the late Murray and Marilyn Grant, Chaim Topol, Michael Finkelstein, Sue Ann Friedman and many others. “I’ve heard from [Newman’s] daughter and his friends that he loved Israel,” said Androphy, who added, “He shaped Americans’ perceptions and love of Israel through his portrayal of Ari Ben Canaan in ‘Exodus.’ ”

Newman even had a sense that the camp would one day lead to peace in the Middle East. In 2000, Newman wrote to the Grants, founders of the village, “I share your hope that, in the future, this camp can reach children from throughout the eastern Mediterranean and serve to enhance the efforts toward peace in your region.”

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Original article published in the JNS

Ronen Bar-Abraham, director of Adraba-The Shirley Lowy Center for Children with Disabilities, says it was founded “to fulfill an unmet need in Israel.”

Two 13-year-olds with autism—surrounded by family, teachers, guests and Rabbi Mikie Goldstein—celebrated their b’nai mitzvah during a special Thursday-morning musical Shacharit service at the Adat Shalom–Emanuel in Rehovot, Israel. Aviv and Yair put on tefillin, carried the Torah scroll, and recited the Torah blessings and prayers with the help of an augmented communication device. The bar mitzvah took place on May 26 as part of the Masorti (Conservative) Movement’s Adraba center, which has been developing and conducting bar and bat mitzvah programs for children with disabilities for more than 25 years now. To date, more than 5,000 children have taken part in the program.

It continues to be a busy season for participants in the program. From Akko to Haifa, Karmiel, Kfar Vradim and the egalitarian area of the Western Wall in Jerusalem, 100-plus teens with disabilities from families of all backgrounds and levels of observance will celebrate b’nai mitzvah at 20 venues between March 24 and the end of June.

According to Ronen Bar-Abraham, director of Adraba-The Shirley Lowy Center for Children With Disabilities, the bar and bat mitzvah program was founded “to fulfill an unmet need in Israel.” Bar-Abraham is proud of the program and its commitment to serve the needs of all Israelis. “The Masorti movement believes that every Jew with disabilities or challenges is a full and equal member of Klal Yisrael and should be included in a minyan as is every Jew.”

Aviv carries the Torah at his bar mitzvah in Rehovot, Israel, on May 26, 2022. Photo by Howard Blas.

Goldstein, the English-born rabbi who moved to Israel in 1989 and has been leading Adat Shalom-Emanuel since 2014, appreciates the unique nature of the program. “It is a rare chance for these children and families to celebrate a Jewish life-cycle event they might not otherwise have thought possible,” he said.

He appreciates that the students come from “all sorts of religious and non-religious backgrounds—from Orthodox to completely secular to celebrate together” and believes “the program shows that pluralism can exist.”

‘It is inspiring every time’

The special day started with Bar-Abraham welcoming the 40 family members, teachers and guests and putting them at ease. “Shalom and mazal tov to all who enter! You can sit where you want—men and women together.” He also reminded excited guests to hold off on showering the b’nai mitzvah with candy until they finish leading the service and reading from the Torah.

Adraba staff shared a PowerPoint and video of the program, which described the curriculum and preparation process for the more than 200 students enrolled in 30 Israeli schools.

Ruth Rubin Lavie, who came on aliyah in 1978, began playing “Hinei Mah Tov” on her guitar. She is a congregant, b’nai mitzvah teacher and singer who regularly volunteers her musical talents by accompanying on guitar at the services. “It is inspiring every time to see the happiness of kids coming to the Torah and of parents’ kvelling,” she said.

Guests used the red, hardcover B’chol D’rachecha accessible siddur, for which the Adraba Center and the Masorti Movement have received awards from the Shalem Foundation (2010) and JDC-Ashalim. The siddur utilizes simple explanations, various colors and fonts, and picture icons that assist those unable to read standard Hebrew.

Ruth Rubin Lavie played “Hinei Mah Tov” at the ceremony on May 26, 2022. Photo by Howard Blas.

Throughout the entire service, Aviv and Yair’s teachers patiently stood next to them with smiles on their faces. The teachers helped their students remain on task and facilitated student reading and singing with their augmented communication devices.

The service kicked off with the young men offering personal blessings. “Thank you, God, for giving me the ability to smile and be with my family.”

Goldstein and the teachers consistently modeled sensitivity, respect and inclusivity for all participants and guests. Prior to the central Amidah prayer, Goldstein asked: “Those who are able, please stand.” When the b’nai mitzvah boys had difficulties remaining at the bimah, a staff member seamlessly walked with them around the room until they were ready to return to the service.

Each boy was called to the Torah by name to recite the Torah blessings. Goldstein served as the Torah reader. Yair’s mother, Iris Elkobi, addressed her son, saying “despite the challenges, you are a leader in all areas. … Your dream is to be a millionaire—always listen to your dreams!”

Iris added, “This program is so special. It is a big mitzvah. The bar mitzvah is important for him and for the family, too.”

His father, Chaim, is proud of all five of his sons, but noted that this bar mitzvah was particularly miragesh, “emotional” in Hebrew. He elaborated, “It was so special seeing Yair in his tefillin. Today is a d’var kadosh—‘a holy event.’ ”

Yair reads Hebrew at his bar mitzvah in Rehovot, Israel, on May 26, 2022. Photo by Howard Blas.

Yair’s school bus driver, Aron, grew emotional when he described the significance of the bar mitzvah. “This program is more important than tanks and missiles,” he said, acknowledging the amount of money Israel spends on defense while also emphasizing the need for ongoing funding to support the b’nai mitzvah program.

At the end of the service, Yair and Aviv received their own personalized copy of the siddur, as well as personalized blessings from parents and teachers. The ceremony took place under a large tallit. The young men were then showered with candy, lovingly tossed by kvelling guests.

The celebration continued with a festive breakfast of bread, salads, cakes and pastries outside in the synagogue’s specially decorated garden.

As the guests said their final “Mazal Tovs,” Adir and Yair left to return to school. The Adraba staff now turned their attention to the 20 students looking forward to celebrating their same milestone before the school year ends. In a few months, it will be time to begin preparing even more Israelis with disabilities for their special days.

The red, hardcover accessible siddur, used by the boys at the ceremony in Rehovot, Israel. Photo by Howard Blas.
The bar mitzvah venue, Adat Shalom–Emanuel in Rehovot, Israel, on May 26, 2022. Photo by Howard Blas.
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