Amira's Posts

Original Article in The New York Jewish Week:

Parents of young adults with disabilities–from Maine to California—use the term “falling off the cliff” to describe the situation their children often face upon graduation from high school.  They speak about the lack of adequate training programs and job opportunities for their children.  Without job training and employment, they potentially face fifty or more years of unemployment or underemployment, inadequate opportunities to form friendships and a sadly sedentary life of movies, video games and unhealthy eating.

While the unemployment rate in the population of people with disabilities is worrisome, there is reason for hope.  My recent travels across the country, generously supported by the Covenant Foundation, offer many examples of creative job training programs and work opportunities for people with disabilities—many started by their parents.

First the bad news:  According to the Bureau of Labor Statistics, in 2017, 18.7 percent of persons with a disability were employed.  In contrast, the employment-population ratio for those without a disability was 65.7 percent. The unemployment rate for persons with a disability was 9.2 percent in 2017, more than twice that of those with no disability (4.2 percent). (Unemployed persons are those who did not have a job, were available for work, and were actively looking for a job in the 4 weeks preceding the survey.).

The unemployment rate has improved slightly in 2018 across all populations.  According to the United States Department of Labor’s Office of Disability Employment Policy (ODEP) December 2018 Disability statistics, the unemployment rate for people with disabilities was 7.9% compared to 3.5% for people without disabilities.  Labor force participation for people ages 16 and over with disabilities was 20.7% compared to 68.4% for people without disabilities.  Employed persons with a disability were more likely to be self-employed than those with no disability.

Many parents of young adults with disabilities are taking action and creating job training programs and creating work opportunities.   They are starting dog biscuit, sock and t-shirt companies.  They are running boutique laundry services, running bakeries and cafes, making and selling granola—to Whole Foods!  They are running car washes, messenger services, book stores, and even hotels in Germany and India!  Some are even reading mammograms and doing sound engineering.  These businesses serve anywhere from one to dozens of workers.

I visited 13 such businesses between June and December 2018 and learned of many more from these business owners, parents, colleagues and the Facebook group, Autism Entrepreneurship.  Business owners were happy to share lessons learned and challenges faced, including:

-Take the lead from your child’s interests [i.e. dolls, in the case Yes She Can (job skills program) and GirlAgain (a resale boutique for American Girl dolls], but also have a careful business plan and start a business likely to be successful;

-Don’t start a business when you are feeling desperate; start a business after careful research (consult with professionals who know this type of business);

-Strive to keep costs down (investigate cheapest ways to ship, purchase ingredients, package the product, etc.);

-Be aware of such unanticipated costs as legal fees, websites (which are expensive), trash removal, local green taxes, etc.;

-Decide if plan is to be for profit, not for profit or both;

-Remember that running a business takes a lot of time and money;

-Know issues related to compensating workers, and how this can impact on their benefits (including Social Security);

-Transportation is an issue for many workers.  Those who don’t drive are dependent on an often unreliable public transportation system or on Access-A-Ride (which may come very early or late);

-Business owners in this space have a lot to offer each other.  Some would like to be part of a trade group.  Some would like to share advice and consider selling products of other disability run businesses;

There are so many wonderful examples of businesses providing vocational training and work opportunities for people with disabilities. Several are highlighted here:

  • Purely Patrick in Stowe, VT is a one-person business run by Patrick Lewis, 27, (with the help of his mother and two job coaches) from his room in his parent’s Brass Lantern Inn. Patrick is a young man with disabilities and many abilities who assembles and sells various products including kits for soups, cookies and dog biscuits through the use of assistive technology.  He uses a pouring device that is activated by a switch that he controls.  The company sells products online, at various local fairs and at the inn.
  • John’s Crazy Socks in Melville, NY was established two years ago when John, a young man with Down Syndrome, was nearing graduation from high school.  He and his dad were brainstorming business ideas and John suggested a sock company!  Father reports, “We are evangelists on what people with different abilities can do!  The best we can do is make our business a success.  Johns Crazy Socks is a social enterprise/business with 18 people of differing abilities making up the 35 person work force.  The work place is unified with all working side by side.”
  • Spectrum Design in Port Washington, NY is two separate 501c3 programs started by two mothers of children with autism.  Nicholas Center is the support agency and Spectrum Designs is the business component.  Spectrum Designs currently consists of three enterprises—Spectrum Designs, which produces customized apparel (3000-8000 shirts/day); Spectrum Bakes (bakery) and Suds, a boutique laundry service.  The apparel design employs 20+ people with autism and there are currently 60 people involved with Spectrum Designs and Nicholas Center—some are salaried workers and some are trainees. They also have a work out room, go on nature walks and teach health and nutrition.
  • Rising Tide Car Wash in both Parkland and Margate, FL employs 72 people with disabilities out of a total of 92 workers. The company was started by the brother of a person with autism, with the expert guidance of their father, a life-long entrepreneur.  Through Rising Tide U, an online course which provides road maps for entrepreneurs who wish to start businesses that empower individuals with autism through gainful employment, they are helping others get started.

Beyond the dozens of businesses on my growing list which provide creative job opportunities to people with disabilities, foundations like the Poses Family Foundation Workplace Initiative are working with industry to improve training and hiring of people with disabilities.

I keep coming across a very hopeful term in my travels—”Autism Advantage.”  Employers are slowly learning that hiring people with autism and other disabilities has a real business advantage.  This is not “chesed” or charity.  This is good business!  People with autism, for example, are often attentive to detail, follow rules and are loyal workers.  People with disabilities often don’t mind repetitive tasks, and they are likely to stay at a job without looking to move up or out.  The smaller business owners and large corporations continue to appreciate the unique skills and qualities of people with disabilities, the sooner the unemployment rate will go down, and the epidemic of falling off the cliff will come to an end once and for all!

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Original Article in The Jerusalem Post:

How well do admiring Israel tennis fans know Julie Glushko on and off the court?

The night before beating Romanian Monica Niculescu in the US Open first round, the 29-year-old Israeli sat in the player garden and spoke with The Jerusalem Post about tennis and non-tennis matters as she ate her sushi dinner. Glushko next takes on No. 20 Naomi Osaka of Japan in the second round on Thursday.

JP:  What did you do on your days off after winning the qualifiers?

JG: I didn’t do too much for fun this time. I have been resting a lot. Eating – that’s fun actually – and sleeping.  Practicing as well!

JP:  Any superstitions, rituals, prayers or special food as you prepare for a match?

JG: I do not (laughing). No superstitions. I listen to music. I do stuff to relax but I try not to have superstitions because if it doesn’t happen or go the way I want to, I don’t want to be freaking out.

JP:  Favorite Israeli food?

JG: Is malawah Israeli? Jachnun and malawah!

JP:  Favorite beach in Israel?

JG: I just always go to the Hilton. Also Beit Yanai – it is a little bit north, next to Caesarea – is very nice.

JP:  Favorite city in Israel?

JG: Tel Aviv

JP:  Favorite world city?

JG: New York and Melbourne. They are very different, actually. New York is just so alive, it’s crazy, it has so much character. There are so many things going on. And you can find anything you want – except a beach!

And Melbourne – I just love Australia. I love the vibe too. It is the opposite of New York. It is more relaxing and people are more chilled out.

JP: Do you have a favorite Israeli singer or group?

JG: I like Omer Adam. I like Static and Ben El Tavori

JP:  What is your routine after a match, after everyone leaves you alone and stops taking selfies and asking for autographs?

JG: Shower, ice bath, shower again because I am cold.  I’ll take my protein shake then I’ll go eat after I shower, to give body the nutrition it needs, then go see a physiotherapist. It probably takes me between two-and-a-half to three-and-a-half hours to get out of the facility.

JP:  Are there other players you have become good friends with?

JG: Yeah, some girls I am friends with.  I think I am friendly with most of the girls, actually.  Definitely saying hello to most of the girls on the tour.     

 JP:  Do they ever ask you about Israel?   Are they curious?

JG: Some people think that what they see on TV is Israel, which it is not.  They ask me if it is safe to go over there, if it is nice.  I just wish we had some tournaments so people could see that it is actually super safe and nice to be there.

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Original Article in Jerusalem Post:

When E.’s plane from Amman touched down in Rome, she started to cry. After spending a semester studying abroad in Jordan, E., in town to visit friends, felt she could safely put on her Star of David necklace and her prized “If I Forget Thee O Jerusalem” necklace.

Every year, according to NAFSA: Association of International Educators, more than 300,000 American students – 1.6% of the population enrolled in higher education – leave the US bound for universities in Europe, Australia and the Middle East.

Four Jewish-American students – E., D., A., and Z., who preferred not to use their actual names – independently spent a semester studying in Jordan. They spoke with the Magazine about being surrounded by anti-Israel and anti-Jewish sentiments while remaining connected to Israel and Jewish practice. 

Living among the Jordanians

Officially, Jerusalem and Amman have had diplomatic, economic and cultural relations since 1994, when the late Israeli prime minister Yitzhak Rabin and the late Jordanian King Hussein signed a peace treaty, three months after declaring an end to the state of war between the neighboring countries.

But the experience of E. and other American Jewish students studying Arabic language and Middle East studies in Jordan tells a very different story of relations between Jews and Jordanians on the ground. These students often hid their Jewish identities and pro-Israel feelings from host families, language partners and in one case, from a Jordanian Palestinian boyfriend. 

“The only time I explicitly lied,” says E., a student at a large state university in the Midwest, “is when a cab driver asked about my religion.” When she informed him that she was a Christian, he smiled and replied, “We Christians and Arabs are brothers.” In another instance, E.’s Arabic teacher asked the language class to reply to the prompt, “What did you do yesterday?”

“I had to lie,” E. recalls. “I wasn’t going to tell them I was in Israel for Pessah [Passover]!”

D., a student at a private Midwestern university, plans to make aliya upon graduation and work on Israeli-Palestinian dialogue. While in Jordan last year, he observed the public level of antisemitism to be high. His taxi driver announced “Jews in America – lots of money!” D. also learned of a widely-accepted belief that no Jews died in the September 11 attacks and that there is a conspiracy between Jews and ISIS.

E. heard similar comments. One professor taught that Jews in America occupy a prominent place in politics because they have all the money and all the power. Another used a specific Arabic word meaning “to invade” only when referencing Israel, and claimed there was no Arab Spring in Saudi Arabia due to its close relationship with Israel.

“I felt that everything I said had to fit in to the mainstream narrative, and that I wasn’t sharing a huge part of myself,” she says.

A., who also studied in Jordan last year, recounts professors referring to Hamas as “freedom fighters” and to Jordan’s neighbor to the west as “Palestine.” 

Z., a student at a small northeastern private university, had one scary incident when he chanced upon a Muslim Brotherhood rally protesting the US decision to move its embassy to Jerusalem. He had to hide his discomfort and disgust when hearing cries of “Jews are descendants of apes and pigs,” followed by, “We need to fight for Palestine.” During the semester, Z. was shocked to learn that some students “knew more about Neturei Karta than I did!” He reasons, “It fits into a certain narrative – this anti-Zionist fringe group was mainstream to them.”

For all four students, seeing Israeli flags laid across the campus for people to step on was particularly eye-opening. “I was walking with American friends for coffee,” E. says, “and an eight-year-old and his mother stepped on the Israel flag and spit on it.”

Maintaining Jewish identity

For the four students, returning to Israel up to four times during the semester provided a welcome break from their time in Jordan. Crossing back into Jordan wasn’t always simple, though. D. had no problem carrying tefillin in his suitcase when he flew from New York to Amman to begin the semester. But when he tried to come back into the country after spending Rosh Hashana in Israel, he was detained at the border and questioned for two hours. 

He was told, “This is the law – you can’t go into Jordan!” Finally, a supervisor intervened and said in Arabic, “You will cover them up. Don’t take them out or use them in public!” D. did use his tefillin daily, but he made sure to pray in his room with the curtains closed.

D, who describes himself as “a religious Jew,” bought a crock pot, ate pita and hummus in some restaurants, and ate Shabbat meals with friends. Yet he deleted his phone’s Hebrew keyboard and went to Israel for most major holidays.

His true identity was nearly discovered while sitting in a Starbucks. A nearby woman saw Hebrew letters on his computer screen and whispered “Yahood!” 

All students employed tricks while in Jordan to maintain their connection to Judaism and Israel. Student A. baked hamentashen for Purim and called them “American cookies.” E. had a secret “Jewish box” in her room for keeping matza during Passover, and she was careful to get her “Hebrew fix” of Israeli news sources while in the safety of her room. Z. made sure to consume (Jordanian) wine and pita each Friday night. 

Student A. met a Palestinian Jordanian boyfriend through mutual friends. “It ended because he learned I was working at the Shimon Peres Center for Peace,” based in Tel Aviv. “He said, ‘Peres was a war criminal.’ We broke up – over ‘differences of opinion.’”

In a class of their own

The four students flew to Jordan to improve their language skills. Former meccas of Arabic study include Beirut, Cairo and Damascus – but these are no longer viable options. And Morocco, which currently offers an Arabic language immersion program, doesn’t offer exposure to the Jordanian Palestinian dialect which is of greatest interest to them, given their interests in future careers in diplomacy, military, academic and peace work between Israeli Jews and Palestinians. 

CET Academic Programs, through which all four studied abroad, has been sending students to Amman since the summer of 1994. While they don’t know the exact number of Jewish students studying in Jordan in any given year, a representative of the program said, “Anecdotally, I would say there are a number of Jewish students” with varying levels of connection to religion who participate in the program – “perhaps ranging from one to five on each term.” 

The program is aware that the issue of disclosing religious identity is complicated. “We offer students the chance to disclose information about their identity, but many opt not to,” said the representative, who preferred not to give her name. She mentioned that there is time built in during pre-trip orientation to discuss such issues. 

“Sharing connections to Israel, particularly citizenship, is not advised, given political tensions. We do our best to prepare students for the fact that they are highly likely to hear offensive and/or prejudiced language about Jewish people,” she said. 

E feels differently. “When the program director saw my evaluation at the end of the semester, she was shocked I didn’t feel comfortable as a Jew. And I was shocked that she was shocked!”

To never return?

D. will return to Jordan this summer for further study of Arabic. 

A has made aliya and currently serves in the IDF where soldiers in her unit initially thought that she was a Jordanian spy. She was recently asked to use her Arabic language skills as she escorted visiting Jordanian military officials back across the border. Looking back, she notes, “It is complicated – it opened up a narrative I never heard.” 

Z., who describes himself as “all over the Israel spectrum,” with past involvements in J Street and AIPAC, says his greatest disappointment was at the lack of knowledge among the other American students. He concludes, “The peace treaty is only between governments – not between people. There are no people-to-people ties.” 

E. concludes succinctly, “Being a Jew in Jordan sucked!”

Yet Rabbi Marc Schneier, founder and president of The Foundation for Ethnic Understanding, and who in 2011 was the first rabbi to be received in Bahrain by King Hamad bin Isa Al Khalifa, remains hopeful. “More young Jews and Muslims are recognizing that we share a common faith,” he says. “Our singular destiny must have caring and concern for each other.”

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Original Article in The New York Jewish Week:

Highlights of Canada’s first-ever Jewish disability conference.

The “Pushing the Boundaries: Disabilities, Inclusion and Jewish Community” conference, April 15-17th in Toronto, truly pushed the boundaries. A severe ice storm and brief power outage may have been minor inconveniences, but they were not going to stop a diverse group of 175 people from such places as Winnipeg, Calgary, Vancouver, Montreal, Minneapolis, New York and various cities and towns in Israel, from attending the first conference of its kind in Canada. The conference has been in the planning stages for three years!

The extraordinary people attending and presenting, the wide range of relevant and timely content, the excitement and enthusiasm in the main conference room, and the always supportive and nurturing feel helped make this conference very special. Attendees included people with disabilities, family members, advocates, community members, foundation representatives, professionals from schools, camps, agencies and a wide range of Jewish organizations–even a Canadian member of Parliament.

The conference, scheduled to begin on Sunday evening April 15th was delayed in starting due to extremely icy and snowy road conditions. Starting the conference Monday morning allowed for more attendees and presenters to arrive—and for the all-star tech staff to make provisions for presenters stuck in Washington, New York and beyond to join and present by video conferencing. All sessions were consolidated in to two action packed days—everyone left exhausted and happy, armed with notes, handouts and inspiring quotes to guide them in their ongoing work.

Connie Putterman, a parent, advocate and chairperson of Itanu, UJA Federation’s Inclusion Committee, introduced Monday morning’s keynote speaker, renowned disability rights activist Diane Richler, and participated on Tuesday’s advocacy panel. Attendees will always remember Putterman’s brilliant insight: “Advocacy is telling your story in a way that other people can hear you!”

Diane Richler, Joseph P. Kennedy Jr Foundation International Fellow, past chair of International Disability Alliance, a leader in the negotiation of the United Nations Convention on the Rights of Persons with Disabilities, and a member of the the Ruderman Family Foundation advisory board, delivered a talk, “Inclusion Without Limits: What Has to Change.” Richler was impressed with the Canadian Jewish community which she observed, “has made much progress in the last few years in promoting inclusion…With creative energy, we can leapfrog over the traditional ways of supporting people with disabilities and make the Canadian Jewish community a model for others.”

All conference attendees learned from panels on such topics as housing, employment, innovations from Israel (including Alut, Krembo Wings, and Israel Unlimited/JDC) and from case to cause—the power of advocacy. They also attended specialized breakout sessions, taking place throughout the very impressive campus of the Lipa Green Centre for Jewish Community Services at the UJA Federation of Greater Toronto. Topics included recreation, aging education, person-centered models, education case studies, dating and relationships, camping and creating inclusive shul communities.

Keynote speaker, Ari Ne’eman spoke on “Disability Inclusion: Where We’ve Been, Where We’re Going,” comedian and inclusion and inclusion advocate, Pamela Schuller entertained Monday evening with her routine, “What Makes Me Tic,” and Tuesday speaker, Maayan Ziv, wowed the audience in a session on innovation and inclusion. Maayan Ziv, a photographer & entrepreneur who also has muscular dystrophy, shared how she has continued to turn obstacles into opportunities. “I have accomplished what I have WITH my disability, not DESPITE it.” She has developed her Access Now app; she and her team are working to document what is accessible in the world. Two of Ziv’s insightful, inspiring quotes will surely travel home with the conference participants. “Accessibility is a mindset that can lead to inclusion;” “People are not disabled- environments are disabling.”

Attendees enjoyed the opportunity to meet colleagues and to share resources. Many extended their already long Monday day session in to night by visiting a program entitled DANI (Developing and Nurturing Independence) for a tour and dinner.

As the conference drew to a close Tuesday after lunch, and participants continued to comment on the unusual weather (it was snowing again!), many exchanged business cards, hugged new friends, and affirmed commitments to ongoing collaboration as we all continue to push boundaries even further!

Howard Blas was the director of the Tikvah Program at Camp Ramah in New England and is now director of the National Ramah Tikvah Network. Howard also serves as a teacher of Jewish studies and bar/bat mitzvah preparation to students with a range of disabilities and “special circumstances.” He holds masters’ degrees in both social work (Columbia University) and special education (Bank Street College of Education). Howard received the S’fatai Tiftakh Award from Boston Hebrew College’s Center for Jewish Special Education in 2012 and the 2013 Covenant Award for Excellence in Jewish Education. He writes regularly for many Jewish publications.

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