Disabilities

Original Article Published On The New York Jewish Week

Inclusive Jewish summer camp options for children and young adults with disabilities now abound.

This is part of a series of essays in honor of Jewish Disability Awareness, Acceptance and Inclusion Month.

When the Ramah Camping Movement started including campers with disabilities through its Tikvah Programs in 1970, the world was a very different place.  Tikvah’s founders, Herb and Barbara Greenberg, two Long Island school teachers, faced opposition and roadblocks almost every place they turned. They were told that “including people with disabilities would bankrupt the camps, disrupt the structure, lower the level of Hebrew and cause the ‘normal’ campers to leave.”  

One Ramah director, Danny Adelman, z’l, (director of Ramah Glen Spey in New York, and later, Camp Ramah in New England in Massachusetts) felt it was a Jewish value and imperative to include people with disabilities.  With that “yes” in the late 1960s, the Jewish inclusive camping movement was underway! Every Jewish summer camp, school, youth movement and Israel which program which supports and includes people with disabilities should pause to remember and pay tribute to the pioneering, brave work of the Greenbergs.

It wasn’t easy going at first.  Once the camp agreed to Tikvah, the Greenbergs first had to find those campers.  As the Greenbergs, long-time citizens of Israel after 29 years directing Tikvah, report, “They weren’t in the synagogues!”  Rabbis weren’t very helpful in identifying participants since families of children with disabilities weren’t coming to the synagogues—they didn’t feel welcomed.  They managed to find eight participants for that first Tikvah summer. 

That first summer 50 years ago laid the groundwork for inclusive camping within Ramah and in all of Jewish camping. Now, all 10 Ramah overnight programs and it various day camps support campers with disabilities and their families through camping programs, vocational training programs, supportive employment, Israel trips and Family Shabbatons.

In the past ten years, we have seen in increase in the number of Jewish overnight and day camps supporting campers with a range of disabilities, and a general shift in attitude toward inclusion.  Camps are doing a better job training their staffs, providing tools to support all campers. The Ramah Camping Movement offers an inclusion track at its twice a year national trainings, and the Foundation for Jewish Camp (FJC) has a network for inclusion specialists, and offers a disabilities inclusion track at its biannual Leaders Assembly. 

Families of children and young adults with disabilities now have more choices in summer camping—by location, religious affiliation, and type of camp.  And camps with camping programs are increasingly looking for ways to expand vocational training and employment opportunities for people with disabilities as they get older.  Keeping Jews in Jewish camp for as long as possible continues to be a goal of Jewish camping—for people with and without disabilities.  

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Original Article Published on The New York Jewish Week

Timed to coincide with February’s JDAIM, the international group will trek Africa’s tallest mountain using Israeli designed special assistance technology.

This year, I will not be spending Jewish Disability Awareness, Acceptance & Inclusion Month (JDAIM) with my colleagues and friends at 10th annual Jewish Disability Advocacy Day on Capitol Hill (February 4th).  And I won’t be teaching about disability inclusion at synagogues or college campuses across the country.  While I will “miss” the more traditional marking of JDAIM, I will have the once in a lifetime opportunity to experience Jewish disabilities inclusion in a very unconventional setting—Mount Kilimanjaro in Tanzania!

I will attempt to trek up the 19,341 foot mountain, through five ecosystems and vast game preserves, with 27 hikers from Texas, Montana, New York, and New Jersey, as well as with participants from Israel.  The delegation includes a twice paralyzed Utah athlete and her husband, a Peruvian born cyclist and skier who is also an amputee with paraplegia, an Israeli army veteran who is paralyzed, a 9/11 first responder who experienced PTSD, a local Tanzanian man with paraplegia and others who believe in the mission of FAISR—Friends of Access Israel.

FAISR, started only several months ago, and Access Israel, founded just over 20 years ago in Israel, is an organization which uses education, advocacy and technology to promote accessibility, inclusion, respect, removal of actual and perceived barriers, and an equitable environment for people of all abilities around the world.

The trekkers will ascend the Marangu route, also known as the Coca Cola trail, to reach the peak.  In accordance with best practices and Tanzanian law which assures the safety of hikers with and without disabilities, the delegation will be accompanied by three cooks, 11 guides, and 70 porters.  Daily mileage will range from 3.1 miles on the acclimation days, to a grueling 13.7 miles during the final ascent, setting out just before midnight Saturday night with the goal of reaching the summit at sunrise.

The group should be well-rested for the final, all-night Saturday night ascent.  We will be spending a relaxing Shabbat at 15,420 feet and will enjoy vegan kosher Shabbat meals, prayer services (including Shabbat morning where we will read the Song of the Sea from a torah scroll (yes, we are carrying a kosher torah scroll up the mountain!). And I will have the privilege of teaching a favorite JDAIM Talmud text on inclusion!

The climb up Kilimanjaro is believed to be the largest delegation of hikers with disabilities.  Starla Hilliard-Barnes, who was selected as Ms. Wheelchair Montana in 2014, became the first wheelchair-user to compete in the Mrs. Montana pageant in 2016.   She is founder of Moving Forward Adaptive Sports and the charity, Gifts of Love, and will be accompanied by husband, Shannon Barnes.  Hillard-Barnes will use a specialized wheelchair, known as a Paratrek, as she ascends Kilimanjaro.  “I’ve dreamed since I was a little girl to go climb Mount Kilimanjaro,” reports Starla.  She has been hearing about Africa and Kilimanjaro her whole life from her grandparents, who were missionaries there.

In a phone interview three weeks before the trip, Hillard-Barnes concedes that she has “never sat on a Paratrek” and “never even touched one!”  The good natured Hillard-Barnes playfully reports, “It will be interesting.”  The experienced hand-cyclist, who has a great deal of hiking and camping experience feels her biggest challenge will be “giving up my independence and letting someone else be in control.”   Unlike with hand cycling, which she does on her own, she will need to rely on others when she uses the Paratrek.

Omer Zur, founder and CEO of Paratrek, the Israeli company that specializes in finding solutions for people with disabilities to enable them to enjoy nature with groups of people with and without disabilities, is very aware of the need to find the right balance between assuring the independence of the trekker, and offering assistance as needed.  He designed the first Paratrek to enable his fiercely independent father who was paralyzed 35 years ago during the Yom Kippur War to climb mountains and go camping.  “My parents wanted us to be the best version of ourselves and to go out in nature and be comfortable.”  On a three-year post-army trek, Zur realized that his father never had this opportunity.  He set out to design an apparatus for his dad.  His father was not pleased with the initial concept—a stretcher carried by Omer’s friends.  Zur then created the Paratrek, and he and his father set out on a 33-day journey.

The Paratrek has a rickshaw-style bar in the front that fits around another hiker’s waist and handlebars in the back that a second person can use to stabilize or push the trekker with paraplegia, if needed. Zur will be traveling from Israel to Tanzania with five Paratreks, extra shock absorbers, wheels and other supplies.  On the trip, Zur will make sure the Paratreks are in proper working order, and he will be there to help assure the comfort and safety of each participant.

Hillard-Barnes initially learned of the Kilimanjaro hike from Facebook friend and fellow paraplegic, Marcela Maranon.  Peruvian-born Maranon, who lives in Dallas, Texas, lost her left leg and became paralyzed from the waist down in a car crash at age 19.  Following what she described as a “very dark period” of several years, she entered rehab in Baltimore, Maryland.  Her experiences with ReWalk, an Israeli-made, FDA approved wearable robotic exoskeleton that provides powered hip and knee motion to enable individuals with spinal cord injury (SCI) to stand upright, walk, turn, and climb and descend stairs attracted a great deal of attention in the United States, Israel and around the world.  She went on to be the public face of Rewalk. She playfully notes, “I am the girl in the brochures!”  She has also fallen in love with Israel, reporting, “When I went to Israel, I felt Israel was my second home—it is so beautiful, the food is fantastic, they have the best beaches…”  Maranon and Hillard-Barnes will get to meet in person in Tanzania on February 2nd as they get acquainted with their fellow climbers and the Paratrek.

James Lassner, executive director of Friends of Access Israel, is inspired by the unique stories of each of the participants.  “With our collective physical strengths, mental toughness, and diverse abilities, we are all looking forward to joining together to conquer Kilimanjaro as a team.  Our goal is to unite as one, laugh together, cry together, trek together, and celebrate together at 19,341 feet.”

When the delegation gathers at JFK airport in New York on February 2nd, they will be one step closer to reaching the summit of Kilimanjaro, and spreading the word for inclusion.

Please follow the expedition’s updates on Facebook and Instagram.

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Original Article Published on the Camp Ramah In New England

By Miriam Benson

National Ramah Tikvah Network Director Howard Blas paid a visit with a special delegation including (from right to left, above): Cindy Dolgin, National Ramah Commission Development Director; Allison Kleinman, LCSW, Director of Jack and Shirley Center for Special Needs at the Marlene Meyerson JCC Manhattan, and Michelle Wexler, LMSW, who wears three hats: Camp Settoga CIT Director, Center for Special Needs School Age and Transitions Coordinator, and Center for Family Life Tween Coordinator.  The group toured our Machaneh (camp) led by Howard as well as Dr. Bonnie Schwartz, Ramah Palmer’s Tikvah Director.  For Bonnie’s recent reflections on Tikvah, please see here:

Tikvah: Realizing the Hope by Dr. Bonnie Schwartz, Tikvah Director

The purpose of the visit was primarily to share the vocational education program at Ramah with colleagues from the JCC of Manhattan Center for Special Needs. Allison Kleinman has been Director for 10 years, and she is also co-chair of the UJA NY Task Force on People with Disabilities.  All the members of this delegation share a serious interest in job training for people with disabilities, and the very real issue of what happens for people with disabilities after they graduate from high school.   On the tour, the delegation visited members of Voc Ed and Voc Ed Maavar (Transitional group) hard at work at many jobs around our machaneh. The group below successfully performs the daily essential work in our mailroom, including sorting and delivering hundreds of pieces of mail and packages.

Pictured here:  preparing hundreds of sandwiches in the kitchen for Tuesdays Six Flags trip, making up guest rooms in the guest house, filling snack orders at the Makolet (Snack Outlet) and baking in the Voc Ed bakery”.

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Original Article Published on The Respect Ability

This week’s Shabbat Smile was written by Howard Blas about a recent Access Israel conference.

Yuval Wenger knows a thing or two about accessibility and inclusion in Israel—and he has been sharing it with Israel and the international community for over two decades. As Founder and President of Access Israel, the NGO that promotes accessibility in Israel, he spoke at its recent international conference.

Yuval depicted Israel’s transformation in accessibility through his family’s own story: he grew up with a father in a wheelchair, and later became a wheelchair user himself. As a child, Yuval simply accepted the fact that he and his siblings would have to help their father navigate the inaccessible world of Israel. This sometimes meant carrying him to get places.

Many years later, as a 22-year-old pilot in the Israeli Air Force, Yuval Wenger became paralyzed when his helicopter crashed. He later married, had three children, and enjoyed family time. But living with a disability in Israel reached a peak during a family vacation: despite being told that lodging would be accessible, Wenger was unable to enter the bathroom in his wheelchair. Outraged, Wenger wrote about his plight to then-President Ezer Weizman, also a former pilot. To Wenger’s surprise, he received a response two days later from Weizman, ordering him to start Access Israel and come to his home six months later to celebrate its founding.

Years later, Access Israel and Wenger have accomplished a great deal.

The Access Israel conference featured 800 people from 22 countries. Conference attendees included inclusion and accessibility professionals, product and application engineers, foundation and program heads, government officials, journalists and accessible designers from countries including Australia, Bulgaria, Canada, Chile, Germany Hungary, Ireland, Latvia, Sweden, the United States, and more. Israelis in attendance included representatives from all walks – and wheels – of life.

As a disabilities inclusion professional and as a writer, I have been privileged to attend many conferences and trade shows in great settings with top sessions and networking opportunities. But the Access Israel conference provided all of this and more. There were many opportunities throughout the conference for meaningful conversation across a wide range of settings—from Shabbat dinner at Wegner’s home to the Feast for the Senses, where we experienced dining without the use of our vision, hearing, or hands.

Among the most impressive aspects of the conference was its model of widespread inclusion. People with disabilities were prominently featured in every aspect of the conference. There were presenters with disabilities, journalists with disabilities and commissioners on disabilities from the mayor’s offices of New York and Chicago. Additionally, accommodations for all attendees were seamlessly supported with closed captioning and sign language in Hebrew and English.

The program itself also provided attendees with a glimpse into the latest thinking and technology in the disability community. One such highlight was a Google presentation on accessibility. Eight members of Google’s accessibility team from New York and California hosted an Accessible Technologies Speed Dating event in which pairs of delegates briefly toured seven stations, learning about such technologies as SignTime (translates texts in to sign languages), Steps (online map), and some Israeli startups: EyeControl (screenless device, assistive technology), Right Hear (turns public spaces into accessible environments for people with orientation challenges), StepHear (orientation and guidance systems for blind and visually impaired), Accessible Roads (navigation on accessible streets and roadways), Travaxy (accessible travel), and GalaPrompter (vocal recognition and audio description software for deaf, hard of hearing, blind and low vision theatre-goers).

The conference showcased Israel’s people, technology, food and “Start-Up Nation” status in the most favorable of lights. We learned, for example, that Israel has a type of legislation that requires Israel’s government institutions with more than 100 employees to fill at least five percent of jobs with disabilities; Israel’s beaches also boast several access points and ramps; and Israeli ambassadors are working in local communities in Bulgaria and Ecuador to help their local communities build accessible playgrounds.

As Commissioner Victor Calise of NYC’s Mayor’s Office for People with Disabilities said, “It is always a pleasure to travel around the world to see what our international partners are doing to improve accessibility. Israel is no exception as I truly enjoyed going to the 7th Annual Access Israel Conference and learning more about the accessible and inclusive technology they are developing. . . . While New York City is working to become the most accessible city in the world, it’s important to see what others are doing to advance disability rights on the global stage to motivate and learn from one another.”

Thank you, Yuval Wegner for sharing such a powerful story; for founding Access Israel; and for the remarkable conference that brought so many interesting, wonderful people together to learn from one another. Hope to see you all next year!

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