Original Article in Chabad.org:

Sometimes what happens in Vegas shouldn’t just stay in Vegas. Levi Harlig’s extraordinary bar mitzvah is one of them.

Levi gave a flawless reading of Parshat Naso, the longest Torah portion of the year, and delivered a Chassidic discourse in Yiddish and Hebrew last Shabbat morning at Chabad of Green Valley/Henderson in Las Vegas. The following evening, the 13-year-old sang and drummed for three hours with entertainer Avraham Fried at a community-wide celebration at the Four Seasons Hotel on the Las Vegas Strip.

That would be an exciting experience for any bar mitzvah boy. But for members of the community who have known Levi since birth, the accomplishment was nearly miraculous.

When Levi was 15 months old, his mother, Chaya Harlig, co-director with her husband, Rabbi Mendy Harlig, of Chabad of Green Valley/Henderson, realized that something was not quite right about their son. “He wasn’t making eye contact or following directions. We got him into all kinds of therapies right away—occupational therapy, speech therapy and more.” Three months later, the Harligs learned that Levi had autism. He has difficulties with personal space and reading social cues, and he often focuses on topics of interest to him but not necessarily to other people.

“My husband took it a lot harder than I did,” said Chaya. “I think women have more bitachon [faith]. We set out to make Levi the best Levi he can be!”

In response to her husband’s concerns about where Levi would go to school, whether he would have a bar mitzvah and other issues related to Levi’s future, Chaya reassured him. “He will have a bar mitzvah, he will get married, and he will use his talents. He is really special!”

Harlig quickly realized that his wife was right. Levi has extraordinary talents, including perfect pitch and what his parents refer to as “audiographic memory.” Levi is able to remember essentially anything he hears, including songs, speeches, conversations he has heard in synagogue or around the Shabbat table.

The bar mitzvah boy shares Torah learning at the celebration. (Photo: Norina Kaye)

The bar mitzvah boy shares Torah learning at the celebration. (Photo: Norina Kaye)

Rabbi Harlig began including Levi in the life of the synagogue from an early age. “Each Yom Kippur, I would give my talk and then find a song in English connected to the sermon for Levi to sing. There was not a dry eye in the shul!” Levi regularly leads the congregation in prayer, and he greets congregants by name, upon arrival—often in a loud voice from up on the bimah!

Levi’s important role in the synagogue has allowed members of the community to become comfortable with a person with disabilities. “Levi is bringing people into the Henderson Chabad. He has a warm smile and welcomes everyone!” reports his father.

Wayne Krygier, a member of the Las Vegas Chabad community since relocating from Canada in 1989, concurs. “Levi is the heart and soul of the synagogue. The shul is his life—he feels so at home here!” Krygier jokes that Levi’s greeting everyone in a loud voice as they enter serves as an incentive to arrive on time.

Dr. George Harouni, a local dentist and regular Chabad of Henderson attendee, observes, “People are now accustomed to seeing someone like Levi. He has been part of the community since birth; no one thinks of him as being different.”

When Levi’s bar mitzvah approached, his grandfather, Rabbi Kalman Shor, who also serves as a rabbi for the Chabad of Henderson community, taught him Torah cantillation and sat with him for regular practice sessions. He notes that Levi’s musical talents made his job “much, much easier—once he learns it, he remembers it.” The congregation was clearly moved at the bar mitzvah. “They thought it was beautiful and emotional. And they were impressed that he made no mistakes.”

Jeff Berkow, a retired South African-born businessman and longtime active volunteer in Chabad of Henderson reports: “Levi was flawless! He sang the trope [cantillation] like a chazzan with 30 years of experience. People were amazed!”

Singing with Avraham Fried. (Photo: Norina Kaye)

Singing with Avraham Fried. (Photo: Norina Kaye)

High Praise From a Noted Singer

Levi’s bar mitzvah celebration continued with an Avraham Fried concert, attended by 300 people, a natural choice given Fried’s musical talents and personal qualities. Harlig explains, “He is a beautiful singer, a caring person, and he always showed love for Levi. I figured people would see them sing together, love it and get inspired. They were on a high.”

Fried reflects on the special Shabbat and evening noting, “I knew this bar mitzvah would be very special and memorable but, boy, this was out of the park! Levi loves music. He sings beautifully, and has a great ear and rhythm. He knows all my songs exactly as they appear on the CD. Every musical line and harmony, every place where the song modulates, and the intros and endings, not to mention every special inflection that I sing! We sang so many songs together—Hebrew and English. Levi was conducting the orchestra and was totally in charge. I am lucky to have met Levi years ago. I’m lucky he invited me to his special celebration. I’m very happy he has such good taste in music!”

The community’s embrace of Levi and inclusion of people with disabilities extends beyond one special Shabbat. The Harligs and the community dream of making Chabad of Green Valley/Henderson the “central address” in Las Vegas for including people with disabilities. “Going forward, we hope to continue showing the importance of inclusion, which Chabad has been doing for many years—unconditional love for all humans,” says Harlig.

Father and grandfather listen to the bar mitzvah boy. (Photo: Norina Kaye)

Father and grandfather listen to the bar mitzvah boy. (Photo: Norina Kaye)

Harouni is excited about Chabad’s potential to become even more welcoming to people with disabilities. “Inclusion will be a great addition to our shul. We could be a real center to offer people with disabilities a sense of belonging and an opportunity to be a part of the community.”

Berkow, who assists Harlig in running Chabad, proudly notes, “I want our Chabad to be theshul of inclusion, the place that caters to people with special needs and where inclusion is the centerpiece.” He also hopes Chabad of Green Valley/Henderson will serve as a satellite to the already successful Friendship Circle 15 miles to the north.

Chaya Harlig notes that Chabad recently purchased land, and future plans include Levi’s Place, where people can come for homework help, tutoring, programming and friendship. “We will have a community center serving many families. We will be inclusive and work together with all children on all levels.” She continues to hear of the impact that Levi has had on the Las Vegas Jewish community. “Because of him, people are becoming more religious, closer to the synagogue and Hashem.” She notes that she knows other shluchim families with children with disabilities, and that Chabad offers resources and support.

(Photo: Norina Kaye)

(Photo: Norina Kaye)

Inclusion Initiative a Welcome Partner

Rabbi Harlig has found a natural partner in his mission towards greater inclusion the Ruderman Chabad Inclusion Initiative (RCII), directed by Dr. Sarah Kranz-Ciment. RCII is dedicated to building on the philosophy and mission of Chabad-Lubavitch by providing Chabad communities around the globe the education and resources they need to advance inclusion of people with disabilities. RCII engages Chabad’s network of resources to create a culture of inclusion so that all Jews feel welcomed, supported and valued throughout their entire lifecycle.

RCII is producing a song, a music video and an inclusive mural that shows that everyone belongs. It has also developed an an online bar and bat mitzvah guide, titled “Practical Ideas for Inclusive Bar and Bat Mitzvahs.”

Kranz-Ciment is proud of the work of the Harligs, their community and of Levi’s bar mitzvah, which she notes was “an opportunity to publicly show and make a statement about his many talents.” She continues, “Every Jewish soul is meaningful, and is obligated to be Jewish in the best way he or she can. The Rebbe said, ‘Your birthday is the day Hashem decided the world can’t exist without you. Inclusion is a chance to bring this to the forefront and show that what each person can do is valuable.’ All of us have a place in Judaism.”

(Photo: Norina Kaye)

(Photo: Norina Kaye)
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Originally published on Chabad.org

Chabad emissaries’ unique celebration and video for their son with special needs

When the Diskin family was contemplating a move from the Crown Heights neighborhood of Brooklyn, N.Y., to Munich in the late 1980s, there was no Chabad presence in Germany, the Berlin Wall was still standing, and they were instructed by the Rebbe’s secretary to get their parents’ permission before considering the move. Thirty years later, Rabbi Yisroel and Chana Diskin speak fluent German, provide for the many needs of the diverse Jewish community of Munich and oversee 19 Chabad centers around the country. The Diskins have also been open with the community about the personal and practical challenges they have encountered during the last 13 years with their youngest son, Zalman, a young man with autism and hearing impairments.

The Diskins were blessed with five children in the first decade of marriage. They always wanted more and began to lose hope that they would have additional children. Then, children numbers six and seven were born back to back. “We were euphoric,” reports Chana Diskin. “When our sixth child, Zalman, was born, the whole community came together for his bris.”

When Zalman was 5 months old, he contracted meningitis, and the Diskins began an unchartered, challenging journey—one that involved a great deal of learning and soul-searching. They noticed a hearing loss at 16 months; he had a cochlear implant after that. At 3 years of age, Zalman began to display symptoms of autism. “We were very determined to do whatever we could to help him recover,” says Chana Diskin.

The Diskins had to juggle their roles as community leaders and as parents who were dealing with the many issues related to Zalman. Chana Diskin processes difficult situations through talking with friends and people close to her. She frequently discussed Zalman in various classes she led; and in “a small, intimate women’s group,” one participant boldly asked, “Did you think you were playing with fire, forcing G‑d’s hand and wanting more kids?”

She feels it took until Zalman was 9 or 10 to come to terms with the fact that “this is who he is and who our family is.” Yet her questions and concerns continued. “When Zalman was 12, it dawned on me that he won’t be able to say a brachah [blessing] or count in a minyan [the quorum of 10 Jewish men needed for public prayer]. It struck a bad chord in me. I was very upset; it insulted me!”

Diskin remained convinced that Zalman understood a lot more about being Jewish than people realized. “We are fascinated by his connection to Yiddishkeit, on his level. Zalman understands about candles, Kiddush and challah on Friday night. He knows to shut off his iPod when we light Shabbat candles and understands that he can’t watch videos on Shabbat. He also knows that he can’t eat non-kosher food in his German public school.”

She and her husband were also torn about whether or not to hold a bar mitzvah ceremony for Zalman. She was struggling with practical and theological issues. “Would it be appropriate to spend so much money on a boy some would think ‘doesn’t get it?’ And it bothered her that it was questionable whether or not Zalman could count in a minyan.

A Beautiful Video Sends a Powerful Message

About half a year before Zalman turned 13, the Diskins approached a good friend and professional filmmaker who noted that there are not many Jewish children with disabilities in the Munich Jewish community. “The filmmakers felt it was important that we film and celebrate Zalman, with all of his imperfections. They felt it would send a strong message.”

The filmmakers, Paula and Daniel Targownik, wanted to make a full-length documentary. After many conversations with the Diskins, the decision was made to keep it shorter. “We didn’t know how Zalman would respond.” The Diskins were ultimately interviewed separately for the film and shared their very different perspectives. “I shared my struggle, why I was upset with G‑d,” reports Chana Diskin. “My husband spoke about how we never signed a contract with Hashem that all would go according to our plan. Both messages are correct—we can struggle, and we can accept.”

The Diskins began to plan the bar mitzvah, hoping that Zalman would be able to learn to wrap tefillin, even though they weren’t sure he would show up at his own bar mitzvah.

As the bar mitzvah video captures, Zalman can exhibit unpredictable and difficult behavior. For example, he started the school year with a period of refusing to get on the bus and with hitting others. When he was younger, he flushed a very expensive cochlear processor down the toilet.

Four months before Zalman’s 13th birthday, the Diskins had an idea—they would have his beloved Singaporean teacher, Lynn, teach Zalman about tefillin. “We know it takes Zalman time to learn things. Lynn had been successful in solving the school bus-refusal issue earlier in the year through creating a step-by-step picture book for getting Zalman on the bus. She offered to make a picture book for tefillin. Although at first I was skeptical, it worked!”

Father and son say the Shema Yisrael prayer.
Father and son say the Shema Yisrael prayer.

Lynn was up for the challenge. Would Zalman rise to the occasion?

Lynn asked Rabbi Diskin to create a video on how to wrap tefillin, which she used as a basis for a step-by-step book for Zalman. She illustrated two boxes—one representing the head and one representing the arm. Zalman learned that each has a home—in the tefillin bag—and does not belong on the floor.

She started on the shel rosh (head) since it was less sensory. Then, she slowly moved to his arm. They practiced with a plastic tefillin prototype since Zalman was likely to throw it. “On the day of the filming, Lynn told my husband that Zalman was ready! I didn’t expect it,” said Chana Diskin.

She knows her son well. “Once he starts a task, he needs to complete it. It was like magic. When they started filming, we pointed to the pictures, and he followed the step-by-step directions, in order. It was like a miracle!”

On Sunday morning, Jan. 21, 2018, members of the Munich Jewish community began to arrive at the bar mitzvah. Pairs of tefillin were on hand for those who wanted to wrap in Zalman’s honor. Transliterated siddurim were available so all would feel comfortable. As the time for the recital of the Shema neared, Zalman was escorted into the service, wearing his tefillin. “He kept them on until va’ed [the final word of the second line after Shema]!” says his very proud mother. Everyone was visibly moved. Then, he got frustrated and left.” The community continued to celebrate with delicious food and music under a tent pitched for the special occasion.

Celebrating the event with the Munich Jewish community.
Celebrating the event with the Munich Jewish community.

Zalman’s bar mitzvah is inspiring and moving. It also beautifully illustrated the many ways to mark becoming bar mitzvah. When most of the Diskin boys became bar mitzvah, they celebrated by delivering a deep discourse from the Rebbe and by reading from the Torah. “My husband is a baal koreh [Torah reader] and wanted his sons to learn to read from the Torah,” reports Chana Diskin. Some sons also led the shacharit (morning) prayer service.

“Since one of our sons was getting married a week later in California, we didn’t have much family at the bar mitzvah. I sent the video to members of our family.”

Her sister, Rivkah Slonim, who is a Chabad emissary at Binghamton University in New York, recalls, “Although the video was without English subtitles, I understood enough to know that this work had potentially a huge audience and could be profoundly impactful.”

The video of Zalman’s bar mitzvah has been hailed as an extraordinarily moving and poignant demonstration that each child and each bar mitzvah is unique. The Diskins and Zalman have come to serve as an important model for families of children with disabilities on their own special journey.

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Original Article in The New York Jewish Week:

Highlights of Canada’s first-ever Jewish disability conference.

The “Pushing the Boundaries: Disabilities, Inclusion and Jewish Community” conference, April 15-17th in Toronto, truly pushed the boundaries. A severe ice storm and brief power outage may have been minor inconveniences, but they were not going to stop a diverse group of 175 people from such places as Winnipeg, Calgary, Vancouver, Montreal, Minneapolis, New York and various cities and towns in Israel, from attending the first conference of its kind in Canada. The conference has been in the planning stages for three years!

The extraordinary people attending and presenting, the wide range of relevant and timely content, the excitement and enthusiasm in the main conference room, and the always supportive and nurturing feel helped make this conference very special. Attendees included people with disabilities, family members, advocates, community members, foundation representatives, professionals from schools, camps, agencies and a wide range of Jewish organizations–even a Canadian member of Parliament.

The conference, scheduled to begin on Sunday evening April 15th was delayed in starting due to extremely icy and snowy road conditions. Starting the conference Monday morning allowed for more attendees and presenters to arrive—and for the all-star tech staff to make provisions for presenters stuck in Washington, New York and beyond to join and present by video conferencing. All sessions were consolidated in to two action packed days—everyone left exhausted and happy, armed with notes, handouts and inspiring quotes to guide them in their ongoing work.

Connie Putterman, a parent, advocate and chairperson of Itanu, UJA Federation’s Inclusion Committee, introduced Monday morning’s keynote speaker, renowned disability rights activist Diane Richler, and participated on Tuesday’s advocacy panel. Attendees will always remember Putterman’s brilliant insight: “Advocacy is telling your story in a way that other people can hear you!”

Diane Richler, Joseph P. Kennedy Jr Foundation International Fellow, past chair of International Disability Alliance, a leader in the negotiation of the United Nations Convention on the Rights of Persons with Disabilities, and a member of the the Ruderman Family Foundation advisory board, delivered a talk, “Inclusion Without Limits: What Has to Change.” Richler was impressed with the Canadian Jewish community which she observed, “has made much progress in the last few years in promoting inclusion…With creative energy, we can leapfrog over the traditional ways of supporting people with disabilities and make the Canadian Jewish community a model for others.”

All conference attendees learned from panels on such topics as housing, employment, innovations from Israel (including Alut, Krembo Wings, and Israel Unlimited/JDC) and from case to cause—the power of advocacy. They also attended specialized breakout sessions, taking place throughout the very impressive campus of the Lipa Green Centre for Jewish Community Services at the UJA Federation of Greater Toronto. Topics included recreation, aging education, person-centered models, education case studies, dating and relationships, camping and creating inclusive shul communities.

Keynote speaker, Ari Ne’eman spoke on “Disability Inclusion: Where We’ve Been, Where We’re Going,” comedian and inclusion and inclusion advocate, Pamela Schuller entertained Monday evening with her routine, “What Makes Me Tic,” and Tuesday speaker, Maayan Ziv, wowed the audience in a session on innovation and inclusion. Maayan Ziv, a photographer & entrepreneur who also has muscular dystrophy, shared how she has continued to turn obstacles into opportunities. “I have accomplished what I have WITH my disability, not DESPITE it.” She has developed her Access Now app; she and her team are working to document what is accessible in the world. Two of Ziv’s insightful, inspiring quotes will surely travel home with the conference participants. “Accessibility is a mindset that can lead to inclusion;” “People are not disabled- environments are disabling.”

Attendees enjoyed the opportunity to meet colleagues and to share resources. Many extended their already long Monday day session in to night by visiting a program entitled DANI (Developing and Nurturing Independence) for a tour and dinner.

As the conference drew to a close Tuesday after lunch, and participants continued to comment on the unusual weather (it was snowing again!), many exchanged business cards, hugged new friends, and affirmed commitments to ongoing collaboration as we all continue to push boundaries even further!

Howard Blas was the director of the Tikvah Program at Camp Ramah in New England and is now director of the National Ramah Tikvah Network. Howard also serves as a teacher of Jewish studies and bar/bat mitzvah preparation to students with a range of disabilities and “special circumstances.” He holds masters’ degrees in both social work (Columbia University) and special education (Bank Street College of Education). Howard received the S’fatai Tiftakh Award from Boston Hebrew College’s Center for Jewish Special Education in 2012 and the 2013 Covenant Award for Excellence in Jewish Education. He writes regularly for many Jewish publications.

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Original Article Published on The New York Jewish Week

The “Pushing the Boundaries: Disabilities, Inclusion and Jewish Community” conference, April 15-17th in Toronto, truly pushed the boundaries.   A severe ice storm and brief power outage may have been minor inconveniences, but they were not going to stop a diverse group of 175 people from such places as Winnipeg, Calgary, Vancouver, Montreal, Minneapolis, New York and various cities and towns in Israel, from attending the first conference of its kind in Canada. The conference has been in the planning stages for three years!

The extraordinary people attending and presenting, the wide range of relevant and timely content, the excitement and enthusiasm in the main conference room, and the always supportive and nurturing feel helped make this conference very special. Attendees included people with disabilities, family members, advocates, community members, foundation representatives, professionals from schools, camps, agencies and a wide range of Jewish organizations–even a Canadian member of Parliament.

The conference, scheduled to begin on Sunday evening April 15th was delayed in starting due to extremely icy and snowy road conditions. Starting the conference Monday morning allowed for more attendees and presenters to arrive—and for the all-star tech staff to make provisions for presenters stuck in Washington, New York and beyond to join and present by video conferencing. All sessions were consolidated in to two action packed days—everyone left exhausted and happy, armed with notes, handouts and inspiring quotes to guide them in their ongoing work.

Connie Putterman, a parent, advocate and chairperson of Itanu, UJA Federation’s Inclusion Committee, introduced Monday morning’s keynote speaker, renowned disability rights activist Diane Richler, and participated on Tuesday’s advocacy panel. Attendees will always remember Putterman’s brilliant insight: “Advocacy is telling your story in a way that other people can hear you!”

Diane Richler, Joseph P. Kennedy Jr Foundation International Fellow, past chair of International Disability Alliance, a leader in the negotiation of the United Nations Convention on the Rights of Persons with Disabilities, and a member of the the Ruderman Family Foundation advisory board, delivered a talk, “Inclusion Without Limits: What Has to Change.” Richler was impressed with the Canadian Jewish community which she observed, “has made much progress in the last few years in promoting inclusion…With creative energy, we can leapfrog over the traditional ways of supporting people with disabilities and make the Canadian Jewish community a model for others.”

All conference attendees learned from panels on such topics as housing, employment, innovations from Israel (including Alut, Krembo Wings, and Israel Unlimited/JDC) and from case to cause—the power of advocacy. They also attended specialized breakout sessions, taking place throughout the very impressive campus of the Lipa Green Centre for Jewish Community Services at the UJA Federation of Greater Toronto. Topics included recreation, aging education, person-centered models, education case studies, dating and relationships, camping and creating inclusive shul communities.

Keynote speaker, Ari Ne’eman spoke on “Disability Inclusion: Where We’ve Been, Where We’re Going,” comedian and inclusion and inclusion advocate, Pamela Schuller entertained Monday evening with her routine, “What Makes Me Tic,” and Tuesday speaker, Maayan Ziv, wowed the audience in a session on innovation and inclusion. Maayan Ziv, a photographer & entrepreneur who also has muscular dystrophy, shared how she has continued to turn obstacles into opportunities. “I have accomplished what I have WITH my disability, not DESPITE it.” She has developed her Access Now app; she and her team are working to document what is accessible in the world. Two of Ziv’s insightful, inspiring quotes will surely travel home with the conference participants. “Accessibility is a mindset that can lead to inclusion;” “People are not disabled- environments are disabling.”

Attendees enjoyed the opportunity to meet colleagues and to share resources. Many extended their already long Monday day session in to night by visiting a program entitled DANI (Developing and Nurturing Independence) for a tour and dinner.

As the conference drew to a close Tuesday after lunch, and participants continued to comment on the unusual weather (it was snowing again!), many exchanged business cards, hugged new friends, and affirmed commitments to ongoing collaboration as we all continue to push boundaries even further!

Read more